GULU/LIRA, 24 June 2013 (IRIN) - As scientists continue to search for the cause of and cure for nodding syndrome - a debilitating condition that causes seizures and stunting in children - health centres say they need better funding to continue to feed and treat those affected.
Some 3,995 children have sought assistance at four nodding syndrome rehabilitation centres set up by the government in 2012. The worst-affected districts, all in the country's northern region, are: Kitgum, which has recorded 2,034 cases; Pader, with 1,210 cases; Lamwo, with 347; and Gulu, which has seen 330.
"We are out of food to provide to children," Joseph Okwera, who runs the rehabilitation centre in Kitgum, told IRIN.
Short on drugs, food
Goretti Adero, whose 12-year-old son was admitted to a health centre in Lira District, said she withdrew him from the facility because there was insufficient food and an erratic drug supply.
"For me, I decided to bring my child back home where the family can feed him. At that time, there were no drugs at centre, so it was pointless to stay there," she said. "His situation remains the same. Maybe he will get better or not, I don't know, but I will struggle within my means."
Patients at the centres are treated with anti-epileptic medication and nutritional supplements, including folic acid and vitamin B complex.
"We are seeing improvements among the children undergoing rehabilitation at the centre, but the challenge remains poor coordination where we have to follow up for the drugs, yet the district [administration] should have brought them to centre," Robert Omiya, who is in charge of the rehabilitation centre in Gulu, told IRIN.
Children who improve return to their communities, but many say they face stigma from schoolmates and adults.
"When I go to school, pupils always tell me that I am demon-possessed. My friends no longer stay with me, and some teachers fear me," 15-year-old Adoch said. "Even at home, I feel lonely because our neighbours don't want their children to play with me."
Adoch has since dropped out of school.